Outpatient Clinical Trials

The Northern New England Cystic Fibrosis Consortium (NNECFC) has been charged with the responsibility of compiling and analyzing demographic and clinical information of all patients being followed at accredited CF centers throughout the country. This group has also developed standards for microbiology labs for the handling of CF sputum samples, which is now used throughout our region.

We are notified directly of all CF research trials seeking subjects through the therapeutic development network organized by the CF Foundation and can refer patients to these clinical trials.